This and That...

Max is having a day of rest...by way of Ativan knocking him out. He had a few seizures in the early morning, so he needed his medicine to stop them. Which means he's knocked out for the day.

This gives me a few minutes to sit and write about the things that have been going on lately around here!

Our weeks have been really full. We have therapies Monday, Tuesday, and Wednesday, and every other Thursday. Friday I'm keeping open for a "free day".

I got a call from Max's teacher last week. They would be meeting last Friday to talk about his curriculum. Since the school district has 60 days total to set up his IEP and get everything finalized, it could be October before we start regular visits. But, she wants to start coming out and reading to him and let him get to know her better before "school" starts. I've decided we'll use the dining-room as his school room. That way he knows we're doing work in there, and not wishing for cartoons in the living-room!

Max is going in for his teeth to be cleaned on Thursday, this week. He will be under general anesthesia, so he's not moving around while they are cleaning his teeth, and getting xrays. If they see any places that need fillings or caps, they will do that then also. And his front two teeth, and one of his bottom teeth are loose, so we're hoping they will pull them then also. His top two have been loose since July. He doesn't let me get in his mouth much to wiggle them, so they will literally just fall out when they are ready...but that could mean while he is sleeping, and we're not wanting that at all.

He went to the doctor last Friday to see the nutritionist. He's grown this summer, and gone down on weight, so it's time to increase his calories. It's always better for him to have extra weight through the winter, so if he were to get sick, he would have some reserve.

And, since the weather has been nicer, we've been getting out a lot more with him. We'll have a couple of months more of being able to get out with him before respiratory season is in full swing. We started to think of traveling to Oklahoma to see family, and then he had a terrible evening of seizures, vomiting, and general unease. It showed us that traveling with Max right now is just not an option. We were able to keep him out of the hospital that time, because we had all the tools available at home. But, if we were on the road, or in a hotel, it just wouldn't be a possibility. And then, we would be in a place away from his doctors.

We have started the process with Make A Wish, to do a Wish trip in the spring. We'll have some volunteers come out and meet him and hear his wish soon. We'll be able to talk about all of our apprehensions of travel with Max these days. And go somewhere wonderful, all of us. I won't talk any more about it until we have the go ahead and start planning the actual trip...but it's something to look forward to, and plan for through the cold winter!

And, we have a big birthday to plan before that also! I can't believe this guy is going to be SEVEN years old! We started to talk about his birthday party yesterday with Aunty Angie...we're thinking ZOO PARTY! We'll try to go on a week day so it isn't as busy, and we're hoping to see the baby animals that were born this summer. A baby giraffe, baby sea lion, baby tigers...and my favorite baby orangutan!!! But, that's a while off still..so we'll just keep thinking about it and planning!

I'll end with a few photos from the past couple of weeks.

Max enjoying the garden at Washington Park...


Giving Daddy a "skunky look" for taking his picture...


Enjoying an evening stroll at the park..




Watching the boats on the big pond...


And watching our part of Colorado burn...


We're not near the fires, but have friends that are. It's made the air thick and asthma kick up for me and Steve. But, we're safe, and so far, so are our friends' houses.

I think we're pretty well caught up now. I'm sure things will settle soon, and I'll have time to write more...maybe. ;)