Friday, October 31, 2008

Happy Birthday...

Someone is 5 today...

DSC_0042.JPG

Happy Birthday to the biggest strongest monster I know!

He's happily sleeping on my side of the bed right now. His sister insisted on sharing his bed with him last night. I finally put him in our bed when he was all the way on the floor and she was on his pillow.

We've got a full day ahead of us. Pumpkin carving, Veggie chopping, Chili making, lunch eating...all before 6:00 when Max's party starts. Oh...

At 11:30 this morning, the cast from Madame Butterfly at Opera Colorado will be calling to sing to Max. A special Happy Birthday! I'll get pictures and videos and hopefully put them on tonight.

Wednesday, October 29, 2008

Guest Blog...

Hi all,

I'm visiting over on Sam's blog today...

Come on over for a visit.

Tuesday, October 28, 2008

Indeed...

The anticipatory Love of God is a thing mortals seldom realize. See a Mother preparing for her child's birthday - Will she not love that? How she will love this! She anticipates the rapture of her child. Where did the Mother learn all this? From Me.
--Two Listeners

Monday, October 27, 2008

Max has been in this position most of the day:
Photo 258

Grumpy, fussy, crying his head off in between sleeping and diaper changes. I guess he's getting it all out before his birthday on Friday.

Ang and Dan came over. They brought this with them:
DSC_0005.JPG

She makes noises now. Baby cooey noises. Googly noises! And she was wearing stripey pirate socks.

Oh...and they brought me this:
DSC_0003.JPG

That is my very own Grandma's Lemon Cake! I'll share it, but can you believe it? A whole cake!!! GRANDMA IS THE BEST!!!!!!!

I know it is going to taste wonderful, but still will be missing the laughing and love around Grandma and Grandpa's table.

I'm off to give Max some medicine to make him feel better. It's purple and tastes yummy, and always makes him feel better. Then I'll be making my Halloween mask. We'll see if I still have any crafty bones in my body after all these years!

Friday, October 24, 2008

Say cheeeeeeese!

We took Max to the dentist today. She showed us a great way to brush his teeth. He sat with his legs wrapped around Steve's back, and his head was in the dentist's lap, with him laying back. He couldn't really squirm, and he was all relaxed because he was laying down. It was really helpful. She also gave us a little wedge to put in his mouth so his mouth will stay open while I'm brushing or flossing his teeth so he doesn't bite my fingers...which he loves to do when I try to brush his teeth. That little gadget will come in handy any time we need to look into his mouth really.

She saw no cavities, and said if he is under anesthesia any time they'll team up and get some x-rays of his mouth. He can't hold still enough while he's awake for the pictures. I was nervous he'd have cavities on his lower teeth, but it was just calcification, which she said we'll see due to him being tube fed. But that calcification was actually a blessing in disguise because it protects his teeth from cavities.

He's sacked out now. I think I would like to join him! I stayed up way too late finishing my book, Bitter Sweets by Roopa Farooki. I liked it very much, and am looking at how I can get her next one, since it has only been released this month in the UK. Blasted Atlantic Ocean in my way! Life would be so much easier for me if we could just drive over to England now and again!

I think we're going to go get our flu shots tonight. Max of course won't get his with us, but we still have to be covered. I'm waiting to hear back from his doctors to decide whether or not/when we'll get his. They haven't called us at all this week, as they were going to check up on a few things before they scheduled him in. So now I'm wondering if we should do it at all. We know for certain he is allergic to this years vaccine. So how smart of us is it to inject him with something we know he will have an allergic reaction to? Oh well...we'll wait to hear from his doctor.

One more thing...I started this post mad at my sister. The younger one...the one who took my baby niece to Tulsa to see all the family...and sent me this email with the subject line of "Jealous????", with this picture.

lemon cake

Do you know what that is? That is lemon cake. And not just ANY lemon cake...that is my GRANDMA'S LEMON CAKE!!! There she is having lunch with gma and gpa and she has the nerve to pull out her iphone and take a picture of my very most favorite thing to eat in the whole world, and send it to me.

I said I started this post mad at her. When I texted her to tell her she was cruel, she texted back that she is bringing me a piece home. So I'm not mad at her any more. But I'm pretty sure it won't quite taste right not being there sharing it with gma and gpa...but it will be good enough to tide me over until I get to break cake with them in person next!

Sunday, October 19, 2008

Guess where...

We went today?
DSC_0128.JPG

Max and Adeline played and snuggled while we looked for pumpkins for them...
DSC_0014.JPG

DSC_0116.JPG

It was Adeline's first pumpkin patch experience...
DSC_0121.JPG copy

But to Max, it was all old hat...
DSC_0114.JPG

Here's what we came away with...
DSC_0137.JPG

We had a fun time dressing the kiddo's up. Adeline was being super fussy, so I put Max's leg on her to calm her down...family will know why this is funny. Think Brenna holding down the crying babies.
DSC_0177.JPG

Happy Pumpkin!
DSC_0197.JPG

There are about 110 more pictures on our flickr page. Just click on any of the above photos to go see them all.

Friday, October 17, 2008

Delicious Berry...

I went over to our new house today to choose colors for the accent wall. After looking at the existing colors, we're going with Delicious Berry!

The kitchen has accents of New Brick, and the main color is Castle Stone.


This isn't our place, but the colors all together on the Behr webpage.


Sitting there visiting with the owner we'll be renting from, I got so excited to move in! Less than a month!

It's supposed to be warm this weekend, so maybe we'll go to the park to get a few pictures of the leaves. It's been cold and rainy the past couple of weekends. And then Sunday afternoon we're planning on going to the pumpkin patch with Adeline and Angie and Dan.

Hope you all have a fab weekend!

Tuesday, October 14, 2008

Silly Me...

I got a night out with my husbando tonight. We ate out, and then wandered around the book store for an hour and a half! I got 3 books...and a pair of jeans. Not at the book store, but at The Loft. Which, if you like their clothes, $20 off all jeans/trousers right now.

Sweet Adeline will be by tomorrow for part of the day. I think I'll go get her ears pierced. I'm kidding...or am I?

As you can tell, I'm in a pretty silly mood...must be still on a high from getting to eat a FULL HOT MEAL, and look at thousands of books and flip through magazines without once quieting Max. I even perused the DVD section. Borders has a full British TV section...you better believe my Christmas list is going to have a few of those gems on it!

Well, I need to go ahead and finish a load of laundry before I head to bed. But I wanted to offer up this little video...that has made me laugh for a couple of weeks. I don't quite know why, but I just crack up at it. I think I should be Juniece for Halloween.

Monday, October 13, 2008

Aaaaaa-choooo!

We had quite a long day today. It started out at a pediatrician appointment. All was well there. Max is gaining weight, and growing in length. The nutritionist bumped him up on calories again. He's at the 5th percentile in weight, and 70th percentile in height. I'm happy for him to chunk up a bit more before winter, but he doesn't need to get ginormous! We'll start him on a new formula that will have a higher calorie count in lesser volume.

After the peds appointment, we went over to get a bite to eat before his allergy appointment. we hurried down a bowl of noodles and got back in time for our allergy appointment, that went on for another 2 hours. They got all of his medical history, focusing of course, on the allergy side of life.

The nurse came in to do the allergy tests, and after 15 minutes we saw that he was allergic to beef, pork, dogs, and the flu vaccine.

Beef and pork, he's eaten before, but has not had a reaction to. The doctor told us it is likely the gelatin from these that causes problems in Max. When I asked why he didn't react to eating them, or Jello, he said, it wasn't injected into him. Point taken.

Dogs, the dr. said it is likely Max has grown so used to Olive that she doesn't bother him. She does not shed, and being that she is a comfort dog to Max, he saw no reason to get her into a new home. He did say that he would probably have issues with other dogs. We've seen that happen with a friend's dogs before, so now we know.

The flu vaccine was what we went in for. To see what he was allergic to, to hopefully get to the bottom of whether or not he could get the flu vaccine. This was the biggest reaction of them all. The biggest red dot and whelp. The dr. told us that when kids are allergic to eggs (which Max is not.), they do a course of shots, in small increments until the whole dose is given. They will admit him into the E.D. and place an IV before they will give him the vaccine. They will start with a very small dose. If he does okay with that, they will continue on. If he has any sort of reaction, they will quit it there.

There is a risk that he will have a reaction to the vaccine, but it is important to us for him to be protected as well as he can to the flu. But we leave it up to the doctors' discretion as to whether or not he should have it. If not, it's going to be a long winter! But if he can, we will just have to be very cautious, hence the dramatic ER scene. :)

He's back on his allergy meds, and even got another one added onto his list for his itchy eyes.

Days like this exhaust me. They drain all of the energy right out. Telling and re-telling his life story. Remembering the smallest details from 4 years ago. Convincing new doctors that you know what you are talking about, and making sure they are keeping all of it straight.

But, I am good at it. I'm really good at it. Steve and I both are. We're an incredible team.

Thursday, October 9, 2008

Sweet and grumpy Adeline...

Although this is how we spent most of the day...Grumpy...
DSC_0022.JPG

And crying...
DSC_0012.JPG

This made it all worth it!
DSC_0005.JPG

Max was again, so excited that Adeline was coming over today, he didn't sleep last night. So he's been especially grumpy this evening. Little guy loves his baby cousin so much. Except for when I let her put her feet on his head. Then his feelings got hurt and he puckered up and cried a good wailing cry for me. Oh dear...

Wednesday, October 8, 2008

BOo!

Halloween is coming up...that means Max's birthday...his 5th birthday is coming up. And I don't have a clue as to what his costume should be.

I don't usually care so much, but we're planning a pretty big shin-dig and I want him to be the coolest dude there! I've been seeing some amazing costumes that incorporate his wheelchair, but I don't necessarily want him to have to sit in his chair the whole night. A great costume Max's therapist came up with today is Max from where the Wild Things Are, in the boat! (The one he sails off to the place where the wild things are.) Maybe we can use his red wagon, and sit him up in a special chair, and make it a boat.

I really would love him to be one a monster...but I can't find a single monster costume for him this year! And Abbey suggested he be an opera singer. But I don't know how we would make that one work!

So...all of you who know Max...let's hear the ideas!

Sunday, October 5, 2008

Garble Garble...

Oh me oh my...it's raining and cooler outside. It's about stinking time!

It's snowing up in the mountains. Pretty soon that will be a site I'm ready to see go away, but for now, I'm ready for it!

I'm also ready to plan Max's birthday party! Maybe I'll get started on that this week. And I'm also getting excited to move all of my house things into my new house. I've been visualizing where everything will go.

Let's see, what else?

This past week was crazy full. And productive.

We ordered Max's new wheelchair:
quickie zippee

Pretty cool huh? We will get it in a couple of months if everything goes through smoothly, which it likely will, because, we got Max back on Medicaid this week! Yippee! It really is going to help so much.

Later in the week I've got to stop Max's allergy meds so we can get an accurate test on the 13th to see if we can find what makes his body freak out with vaccines. I'm not looking forward to the days with extra snot and little guy itchy eyes.

Okay, off to watch more HOUSE episodes before bed. This post is seeming mighty jumbled to me...but maybe it's just my life right now...pretty jumbled!!!

Wednesday, October 1, 2008

We'll be home soon...

2 Master Bedrooms, 2.5 Baths, 2 Car Garage
This beautiful, 1800 sq. ft. home was lived in for less than 1 year and has all the upgrades including granite countertops, birchwood floors, stainless steel appliances, upgraded carpet & carpet pad, custom blinds, new contemporary light fixtures, and stone-tiled bathrooms. The unfinished basement allows ample room for storage. A private fenced yard landscaped with patio stones and mulch offers maintenance free/ pet friendly living.

outdoor2-1

mainroom2

dining1

And the selling point...
kitchen1

We'll move in November 15th. And we will rent with the option to buy it. And when we buy it, we will put in a stair lift or little elevator for Max. And when we buy it, we will finish the basement and add a bedroom and office, and bathroom.

Oh yeah...and the real kicker about it all...it is less than half a mile from the house we sold a year ago.
;)


Onto other things now...
Steve and I were watching a movie tonight and Max "watched" with us. He was NOT impressed.
IMG_9477.JPG

Big boy hand...
IMG_9478.JPG

Big boy feet...
IMG_9481.JPG

And big boy sweet face...with green marker...from therapy today. Where he decided to color on himself rather than the mirror he was supposed to be coloring on. At least they are washable...don't ask why I haven't washed it off yet. It is just so absolutely pre-schooler looking.
IMG_9479.JPG

I love cousins...

Yesterday on my facebook I put my status as needing to get from one end of town to the other in an hour. The following thread is mostly between my two cousins on my page...and it made me laugh so hard, I had to share it here.

We have therapy again this afternoon, but that's all for today. I'll update about yesterday once I'm back home this afternoon. Until then...marvel at the beauty of twins...David and Derek.


Deana today's schedule just got interesting...therapy at 2:00, pediatrician at 4:00, opposite sides of town!
via Twitter - 11:39am - 15 Comments
Sam Radford at 12:08pm September 30
Helicopter?!

David Hamilton at 12:09pm September 30
I pledge $5 dollars toward the Max Helicopter Fund

Deana Watson at 12:33pm September 30
we could sure use a helicopter some days!

and steve would LOVE to drive it!

Sam Radford at 2:14pm September 30
I bet he would!

Derek Hamilton at 3:18pm September 30
I will have to out do my brother and pledge $5.50 and a pair of sunglasses for Steve so he can look cool when he flies the helicopter.

David Hamilton at 3:22pm September 30
YOU SUCK!!!

i will pledge a solid $5.64 and outdo the glasses with vintage helicopter helmet (with nickname of choice spray painted on it) and a hand done military tattoo of choice... just like pack in 'Nam

David Hamilton at 3:22pm September 30
or back....

whatever

Derek Hamilton at 4:44pm September 30
Well I'm going to throw in, for a limited time, this authentic flight suit worn by W when he landed on the aircraft carrier and the Persian gulf and declared victory in Iraq! Only worn once! That and $7.92

David Hamilton at 5:06pm September 30
how about this for an upgrade... i will bring back the glasses that derek is no longer offering and...

i will throw in in the "Mission Accomplished" Banner that was used only once...

if you take my offer I will include George W. Bush himself.... thats right the 43rd president... in person.... and depending on political views/options... i can have... Read More him rolled up in the banner...

also, i will pledge an AMAZING $9. 23

Deana Watson at 7:13pm September 30
cousins, you have made me laugh my head off this evening!

Derek Hamilton at 8:20pm September 30
Well David I never took the glasses out if my offer. But to sweeten the pot I am going to throw in a classic 1977 amc pacer which kind of looks like a helicopter but I added a propeller connected to a bicycle pedaling system. Also included is a pine tree air freshener which may or may not still have scent.

Steve Watson at 8:45pm September 30
Okay...I guess you've finally pushed her over the edge. I guess I'll sign up tomorrow.

http://www.rotorsoftherockies.com/

David Hamilton at 9:32am October 1
lets get it.... I'd say we are about $838,080 short... but hey... you gotta start somewhere

Do I smell a Max Helicopter Fund Telethon???

I do believe I do....

I will now pledge the mandatory weaponry needed to turn that bad boy into the military helicopter that Max needs to the normal life that every boy dreams (M60D 7.62mm machine... Read More... Read More guns and40 M87 mine canisters)

yeah I googled it

Derek Hamilton at 10:59am October 1
For the telethon we could awesome celebs such as burt reynolds and ben affleck and dana carvey. I don't think they are doing much. Also david you are on the governments list now for searching those.