I wrote about our days in emails, and occasionally on a first generation blog that only our family knew about. But no one really knew what we were going through. The hard days, and the great days, went unnoticed by most of the rest of the world.
And then I started blogging. And I joined a few list groups online for parents whose children have similar disabilities as Max. But it was still a safe place. I didn't have to really meet anyone in person, because they were all hidden safely behind my computer screen.
I've never been one to be quick to introduce myself in a crowd. I always feel a little weird in social settings. But every single time I've met another mom in a similar situation, I have been instantly at ease.
I think it's this sisterhood of special needs moms. There's no room for judgment, and tons of encouragement.
I've only had the privilege to meet up with moms whose children have a similar metabolic to Max's. But I've not met with moms whose children had seizures like Max. Until today!
Meet the Supermoms...

Heather, Maria, and Jenny.
I met Jenny through our pediatrician, and Maria from her, and Heather, from her blog. All of our kids see a lot of the same doctors. They're all in wheelchairs. They all have seizures. They all are tube fed. And, they all GET IT!
It was a great first meeting, and surely the first of many!
7 comments:
What a great picture! And I couldn't agree with you more! I don't know what i would have done without YOU in the early days, but I'm glad we're now on the journey together!
Strength in numbers and friends are blessings.
How wonderful! Look at those adorable little ones! Now it's hard to believe Max was that small once upon a time!
Lauren, stay tuned for the next post on how impossible it is to remember he was little once!
Hi Deana!
I am so glad that you were able to meet with these other moms. You have always been a super mom to me. I know you will be a blessing to each other through all life hands to you.
Our snow is finally melting today. Maybe yours will also, soon. Looks like a fun time at the park over the weekend. Love to you all!
Haha! You weren't kidding, Deana! All those people who walked into Max's room were in shock, as they should be! I always am when I see him!
Thanks Aunt Nancy! Now that we've got our van, we can drive back to see everyone this year!!!
Lauren, you need to see him next time you're down this way. Seriously enormous!
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